If you are a nurse, physician or other health care professional, here is the first book to help you, the clinician, help your patients and families better understand the complexity of the health care system. Chronic conditions and other information is addressed in a manner that can be taught to your patients and patient families, as well as used in “teach-back” and other educational ways. This Guide can help put the clinicians, patient and family caregiver(s) on the same page and is written by well-known home care and hospice author Tina Marrelli. Tina sought to help care truly become “person-centered” and this Guide is a compassionate and common sense view of health care.
The Guide is written in a conversational manner for “lay” caregivers and is divided into two parts. The first part covers the administrative activities that helps one become an effective caregiver to their loved one, friend or the “caregivee”. Included are the caregiving role, skills needed, the care team in health care and the settings for care, advocacy, safety, infection control and prevention and much, much more! The second part is structured as conversational information about specific health problems which are organized alphabetically for ease of finding specific information. Some of the topics addressed include Alzheimer’s disease and dementia, care of the bedbound person, cancer care, diabetes care, older adult care, end-of-life, palliative and hospice care, medication management, and others.
In addition, there are many resources about where to find more information on given topics. Many books and resources address only one condition or health problem, but most people do not have just one problem. Like the old saying goes, the “hip bone’s connected to the thigh bone”- some conditions are interrelated. Marrelli writes “As healthcare has become more specialized and complex, sometimes it seems we have lost that holistic view of one person and their unique needs and wishes”. This Guide seeks to make health care understandable and help family, friends and other caregivers be valued and recognized as the expert on their loved one or “caregivee”. This Handbook is an adjunct to e-Caregiving.com, a web-based educational support system for family and friend caregivers that can be sponsored by health care organizations and provided to their community of patients and caregivers. For more information, visit www.e-Caregiving.com.